Useful Contacts and Links

With the advent of the internet, many more resources are now available.

In the course of our work with children, parents, family members, and healthcare and education professionals involved with Down Syndrome we have amassed a wealth of useful contacts here are a selection of some of the best we have come across.

If you think we should include any others you have come across please let us know. FORM REQUIRED

Down Syndrome Charities

Down's Syndrome Association

Helping people with Down’s Syndrome to live full and rewarding lives.

Downs Heart Group

Offering support and information relating to heart conditions associated with Down’s Syndrome.

Down's Syndrome Education International

Discovering Potential – Transforming Lives.

Children’s Charities

Contact a Family

For families with disabled children.


Working wonders for children with brain conditions.


Changing Children’s lives.

Merlins Magic Wand

We put the magic back into the childhoods of seriously ill, disabled and disadvantaged children.

Congenital Heart Disease Network Logo

Merlins Magic Wand

We proudly support over 6,500 children and 8,000 adults with a congenital heart condition. Find out who we help, and how we help, here.

Support Organistions

Somerset Parent Carer Forum

To give a voice to Parent Carers in Somerset

Youth at Heart logo

Youth at Heart

Xander is a local support worker who can provide help for young people and their families who have congenital heart disease. He will help when the patient is in hospital or at home.


Hidden Disabilities Logo

Hidden Disabilities

The Hidden Disabilities Sunflower is a discreet way for adults and children with hidden disabilities to show that they need additional support or just a little more time.

Hidden Disabilities


Independent Parental Special Education Advice

Free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.

Special iApps

At Special iApps, we develop educational apps for children with special educational needs, including autism, Down syndrome, cerebral palsy, hearing impairment and other learning disabilities.


Family Fund

Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people.